About Cystic

About Cystic Fibrosis


Cystic Fibrosis (CF) is one of the UK’s most common
life-threatening inherited diseases.


There is currently no cure for Cystic Fibrosis.


Cystic Fibrosis affects over 10,000 people in the UK.


Over two million people in the UK carry the faulty gene that causes Cystic Fibrosis – around 1 in 25 of the population.


If two carriers have a child, the baby has a 1 in 4 chance of having Cystic Fibrosis.


Cystic Fibrosis is caused by a single faulty gene that controls the movement of salt in the body. In people with Cystic Fibrosis, the internal organs become clogged with thick, sticky mucus resulting in infections and inflammation making it hard to breathe and digest food.


Each week, five babies are born with Cystic Fibrosis and each week, two young lives are lost to Cystic Fibrosis.


When the CF Trust was founded in 1964, a child was lucky to live over five years. Around half of those with CF today can expect to live over 38 years – not good enough, but getting better.

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